Good evening,Shane had a restful night and began his day with a test from the Respiratory therapist to see if he was ready to cap the trach and also to see if he was able to swallow. Shane became very disappointed and frustrated. Shane did ask the nurse to get the Chaplain who came in and we prayed for Shane’s healing. Shane remained with his eyes closed the remainder of the day and slept until about 8 when he finally broke down and cried. We cried together and talked or shall I say I talked as Shane still cannot talk, however his hand writing is becoming easier to read each day that he is off the high doses of medication.
We are very blessed to have a friend who made a call to someone they know who works with mobility challenged people. This gentleman called me today and then called The Christopher and Dana Reeve Foundation to have them contact us. It was enlightening to have a conversation and begin the process of understanding what lies ahead for all of us. My sincere appreciation for the contact.
Shane is in the beginning stages of processing what lies ahead for him. He will probably have a lot more days like today but we are praying that he will find his can do attitude and take this on.
Thank you for caring.